Archive for November, 2006

Question about food obsession

My son just went to a birthday party where we let him have a piece ofcake, but gave it along with AFP Peptizde enzyme. He longer shows anintolerance for or eggs after a year on the diet and moderate formilk. He kept going back for more even after I told him not to. Hewent 3 times and got a piece, which I took from him, and we left when Isaw him licking the icing on the cake! He acts similar to this when hehas Sprite. He gets very hyper with that, but the cake made him seemlike an addict. We limit both of these, but I was wondering if anyonethought these cravings might be an of something in it.

Tests to order

Just returned from a DAN doctor and he is recommending stool analysis,nutritional analysis from spectralabs (I think, almost 400$) and ametals antibody test ($400). I do have a BCBS PPO and was hoping todo more of the tests from greatplains as they direct bill. Anythoughts on additional tests or alternate tests from greatplainsinstead of spectra labs and/or immunoscience labs. Anyone do the fullautism panel of ab tests (very expensive 1200$)?? Are these testsreally necessary? We are willing to find the money to help our son,but don’t want to do a bunch of tests if they are not needed.

I have ordered some test kits from great plains lab, mercury in theblood, neutroantibodies and stool analysis, hoping insurance will pay.

Also, where do you buy calcium supplements? I bought culturelle forprobiotics and wasn’t sure what dosage to start with? Or should Iwait for the stool tests to come back?

Any thoughts would be great and thanks!

Good marinade and dressing

Hendrickson’s dressing, marinade and seasoning is gluten free. It’s a greatmarinade for chicken, etc. I order it online. $24 for 6 bottles, but you canorder smaller amounts.

Calcium supplements and enzymes

Can you all suggest best that is gfcfsfef ?

And also lately my son has been chewing on his collar a lot. What couldbe the cause ? Is he stressed out or any food intolerances. Please help.

I’m thinking of starting enzymes. I bought AFT peptizyde, Zyme Primeand No-Phenol From Houston Enzymes. Which one do i start first and howmuch ? Do you see improvements after starting enzymes ?

B12 supplement

I’ve been giving my son a combination B12 and supplement for8 days now. It’s not as I didn’t know the difference when Ipurchased it. I’d like to go ahead and use this up though. Itcontains 1,000 mcg of b12 and 400 mcg of folic acid per 1 ml. 1 ml isthe dosage recommended on the bottle and our Pediatric Developmentalspecialist at Cincy Children’s agreed, although she’s the first to saythat she’s not terribly familiar with supplements as treatment forautism. I’m wondering how much B12 is typical for our purposes. Myson is 2&1/2 years old & 28 pounds.

Just beginning

My son is Autistic and we have justbegan the gfcf diet. It’s been 2 1/2 weeks and so far we are doing OK.I can see that it will get harder as we go on. Once he will eat morefood. What I’m struggling with at this point is the hidden gluten andcasein in packaged foods. If any of you know of a site or a list I canfound of acceptable foods that would be great. I have an unacceptablelist. I’m looking for things I can buy in a regular supermarket. Icame from a very small town. The nearest health food store is 40 milesaway. (and it’s not a very good one.) I would appreciate any help Icould get. It’s nice to know that there are 1000’s of us out theretrying to accomplish the same goal.

Pregnant with twins

My 2 year old daughter has Autism. We do not know what caused theAutism but she does seem to have many food allergies and reacts togluten.I am pregnant with twins and due in May. My question is what can weTRY to do, if anything, to keep from Autism happening again to ourfamily. Should I not be eating gluten/casein now? Should I avoid itwhile breastfeeding? What about products, vaccines, medications?Anyone have any help? Noone wants to feel like they CAUSED theirchild’s Autism and I just want to make sure I am doing everything Ican to protect my family.Thanks for any information you might have.

Gse dosage

My son is 3 year-old and 32 LB. Since his constipation is under control, Ilike to start control using GSE liquid. I bought a NutriBiotic GSE liquid(2 FL.OZ) from WholeFood.

In the GSE bottle’s label, it says that mix 1-3 drops in a glass of water orjuice. My son doesn’t drink a lot juice. If I put GSE in juice, it is difficultfor me to make him to drink all the juice.

Please recommend dosage and how to feed GSE. It will be highly appreciated ifyou could share your experience.

Soap

I need some suggestions for handsoap, laundry soap and dish soap.We are supposed to be organic free of dyes and artificals, butsome of the environmentally friendly things I have tried in thepast just didn’t make things clean. I am hoping the trader joe’slaundry soap will work, but if it is like most of their productsit either has gluten or casien or is manufactured on the sameeqipment with milk and wheat.

Help with baby starting diet

My dd is 3yo. No dx other then unknown seizuredisorder, speech delay and ADHD, She has high receptive language skills and Icouldn’t get the drs to see past that and see past the seizures…and not blameit on “pre-existing” conditions. Seizures are under control at this time w/thisdiet :-) She started talking in June after being gfcf for 4 months. Things aregetting better…no ADD at all. We are waiting for a on dd.

Now my ds is 15mo. He is not talking…at all. We started fish oil and he isbabbling a bit more. He was dx with reflux at 6 weeks old and has been put onprevacid (ever since). As an infant he used to go in spurts of eating andstarvation. We tried every type of formula but he refused to eat. We eventried soy which he projectile vomited up. He would poop as many as 10 times aday. On one of our many trips to the hospital he was admitted and tested forallergies. RAST blood test of course was negative. But is IgG and IgA was allmessed up. It showed no antibodies or something like that…they explained ithas being zero (I will go back and check). They didn’t understand what it meantbut wanted to check again later for “metabolic” problems. We put him onneocate. He still did on and off feeds not as bad though. We retested and hetested a bit off but fine, we were happy because there weren’t any red flags. At this time we were stuggling w/our dd but didn’t know of the diet. Then weswitched him to whole milk because he loved yogurt and needed more food andwould drink milk best. Then started solids…he loved. Now he eats almostanything and lots of it, but he is staying at the same weight (23lbs). Now mydd used to poop green before the diet. Now my son poops green too has for quitesome time. We removed milk 3 days ago. He is now very whiney and screaming andcrying, but no green poop. He also got an double ear infection10 days ago. Hehas always been suseptable to colds (we blamed reflux but now not sure). Healso has always had exzema like bumps on his thighs and cheeks.

He is different then dd. He seems to like us LOL. He does some strange things.He is also very “content” to wander with toys. Sometimes he does hand flapping,not often. Sometimes when he bumps his head against the wall, he will do itover and over until I move him. He is happy to lay in his crib awake mosttimes. Sometimes I go to get him and he doesn’t even want out. Good eyecontact and happy…likes games.

He has had shots up to 6 mo. then we were researching about autism and gfcf anddecided not to do anymore. But I did have heavy antibiotics during my pregnancyw/him as well as during delivery and the rhogam shot too.

My question: am I nuts and paranoid or should I start some interventions now? If there is a problem I want to start early (my dd was almost 3). Feel free torespond to any of this. Where we live we have no hospitals. We have no roadswe fly everywhere.