18 months gfcf
My 5 year old son has been GFCF for 18 months. We did a food panelwhen he was 3 1/2, and he was sensitive to many things including alldari and gluten containing items. We just redid the test inNovember. He is no longer sensitive to coconut, rice, corn, sesame,and a few other things, but the gluten and casien conaining items areall still very high. His DAN doctor said that the only way we wouldhave these results is if he was getting gluten and casien some way. Iwas devestated at first, because it has been very hard work for us.Now I am resigned. I threw out the alternative flours that I boughtin bulk at our Co-op, because they might have been contaminated. Wescrubbed the house, including the kitchen cieling. No bread willcross out threshhold. What else can I do? We were giving him goatmilk, cheeze, and butter. They were OK on his original nutritionalwork-up. His preschool teachers are very supportive, and were quickto report, and appologetic about two infractions with crackers.
This post tagged as: bread no gluten corn, contaminated rice gluten, rice flour and gluten
Jeraldine Swabe said,
Wrote on February 4, 2007 @ 3:26 am
Goats milk, cheese and butter all still contain casein. Any milk from ananimal will have casein with the exception of human milk…unless of coursethe human is consuming an animal milk. That might help with the casein.
As for the gluten, I think you just covered everything there with theexception of the infractions, which are hard to avoid sometimes when yourchild is in another person’s care. I go through this with my MIL all thetime.
Wesley Marske said,
Wrote on February 4, 2007 @ 4:12 pm
Hi, first of all the goat’s milk would have casein in it. All dairy productsdo, from any animal including mom’s breast milk. As far as the gluten, even asmall infraction like the crackers can stay in the system for a very long time. There are many hidden ingredients that I am sure ALL of us miss once in a while.Don’t be too hard on yourself. Is your son better for being on the diet? If so, that is what matters most. Chin up. Good Luck.
Connie Guilliams said,
Wrote on February 5, 2007 @ 6:15 am
How do you go about getting a food panel test done? Can it be done bypediatrician or does it have to be done by a DAN doctor?
Santina Winkelbauer said,
Wrote on February 5, 2007 @ 9:02 pm
It depends on whether you want an IgE (immediate response in specificsystem(s), recognized by the general medical community as “allergy”) or IgG(delayed response, may show up anywhere in the body or behavior, many mainstreamdoctors discount any significance but people on this board will tell youotherwise). We had to go to a DAN doc after two allergists had done IgE testingbefore we could get an IgG panel done, even though when looking for celiacdisease our daughter’s IgG to wheat had been high. Since the IgA and other testsweren’t, the gastroenterologists discounted it, saying either that it wasmeaningless or that it could have been one of 20 things (I can’t remember whichdoctor said what now). I should have responded to the latter, from whoever, with”ok, let’s start working down the list. What’s the 1st of the 20?” You may beable to get IgG from your pediatrician or other doctor, but it isn’t easy tofind one who will order it.
If you have a Blue Cross Blue Shield PPO with a suitcase on the card you canuse Great Plains lab (www.gpl4u.com) to get the test if your doctor will signthe paperwork and puts down an appropriate diagnosis code and your insurancewill cover it. Check their website as there are very specific instructions asfar as how to submit the forms.