Archive for March, 2007
No symptoms
My son is PDD-NOS. He is on Concerta forattention, as well as a bunch of vitamin supplements. Long storyshort, I took him to a homeopathic doctor for some testing, as Isuspected gut problems might be there, even though he had no GIsymptoms, other than autistic-like behaviors and learningdisabiities. He did take forever to potty train (almost 4), but hadconsistent ear infections and was on every antibiotic known to man,for almost a year at one point. The homeopathic DR. came back andsaid he had candida as well as some vitamin and mineraldeficiencies. He did not specifically recommend the gfcf diet; thatis to say he didn’t tell me to do it, but to look into it. I’mwondering here, is there anyone else out there who had mild symptomslike I have mentioned but still found improvement on the diet? Or domost of you do it because of irritable bowels and obvious reactionsto gluten and casein? I’m finding it pretty overwhelming, but willdo what I have to for him. But, like everybody else, if I don’t haveto……well, you know.
Recomended labs - round 10
My son dx Autism, 3yrs old, TD-DMPS 3/4 every 8 hours.
We are just starting Round 10. What are the recomended labs, test, blood, urine,fecal??
I have appointment w/reg pediatritian tomorrow for vaccinations…well we willpass on the vacs, but I am gonna ask her to order labs for us. We have not hadany est done as yet.
This is what I have printed out to give her.
Organic Acids Test - Virtually all specimens from children with autism or PDDhave one or more abnormal Organic Acid compounds, due to abnormal levels ofyeast and other gastrointestinal bacteria. These compounds can affect, amongother things, neurological functioning, vitamin utilization, energy level,intestinal wall integrity, hormone utilization, and muscle function. In additionto identification of excessive levels of GI yeast or bacteria, the test alsoreveals nutritional or antioxidant deficiencies, inborn errors of metabolism,amino or fatty acid problems, exposure to solvent toxins, indications ofpossible diabetic conditions, deficiencies of B or C vitamins, and unusuallevels of neurotransmitters.
Panel Includes:
Yeast metabolites
Bacteria metabolites
Nutritional deficiencies
Antioxidant deficiencies
Inborn errors of metabolism
Amino acid abnormalities
Fatty acid abnormalities
Exposure to solvent toxins
Deficiencies of B vitamins or vitamin C
Neurotransmitters
Indications of diabetic conditions
Krebs cycle metabolites
Clostridia overgrowth
Glycolysis
Pyrimidines
65 important compounds
Glycolysis (4), Amino Acid Metabolites (14), Fatty Acids (7), Yeast/Fungal (8),Bacterial (2), Anaerobic Bacterial (2), Krebs Cycle (5), Neurotransmitters (3),Pyrimidines (2), Vitamin C plus 14 others
Metals (blood, hair or urine) - Hair is useful for the detection of toxic metalssuch as lead, aluminum, mercury, and cadmium. Lead may be found in dirt nearroads and is commonly present in paint from older houses. Children with pica orwho eat paint chips may develop toxic lead levels. Cadmium is used in batteries,steel-belted tires, and plastics. The clear plastics used to cover foods may bea source of cadmium and it is also found in cigarette smoke. Mercury is used inbatteries, dental amalgam, vacuum pumps, valves, and seals. High amounts ofmercury from the dental fillings of the cremated deceased have causedcontamination of the surrounding neighborhoods. Arsenic is high in seafood andmay also be found in animals fed arsenic in their feed. Arsenic is also presentin wood preservatives, fungicides, herbicides, corrosion inhibitors, and in leadand copper alloys. Children with autism may respond favorably to removal oftoxic metals. Children with autism as a group also have low values of essentialelements like calcium, potassium, zinc, and magnesium. Treatment of heavy metalexposure usually involves the removal of the heavy metal source and/or treatmentwith chelating agents.
Why is Metals Testing Important?
The test is important for measuring toxic metals that can impede development andnormal brain functioning, as well as measuring levels of minerals essential fornormal growth and good health.
Toxic metals, such as mercury, lead, aluminum, cadmium and others, can affectdevelopment, neurological functioning and overall health. Today, with increasingpollution levels, presence of toxic metals in the environment is constantlygrowing. Chemical products, fertilizers, industrial paint, building materials,fish, silver dental fillings, and vaccines are just some of the sources of heavymetals in everyday life. Toxic metals may normally be present in the body invery low levels, but continuous exposure or metabolic abnormalities can causeaccumulation of heavy metals in body tissues, and subsequently, in the brain.Many symptoms of heavy metals poisoning are identical to symptoms ofneurological and psychiatric disorders, Therefore, it is difficult or impossibleto identify their cause without expert laboratory testing.
It is equally important to measure levels of minerals, which play an essentialpart in numerous physiochemical reactions within body cells. These reactionsinclude receiving nutrients, filtering, emulsifying, absorbing vitamins,transforming energy and eliminating toxins, among many others. Toxic overloadand metabolic imbalances favor minerals depletion.
Test results frequently show high heavy metal levels coupled with low minerallevels in people with developmental and neurological disorders, chronic fatigue,as well as apparently healthy individuals not feeling “a 100 percent”. Ournutritional counselor will help you interpret test results and explain ways tobring metal levels to normal.
Hair:is ideal for initial evaluation because of easy sample collection procedures,accuracy and economic price. Blood, which contains high levels of metalsimmediately after exposure, transports them to body tissues and hair follicleswell supplied by blood vessels. Toxic elements get incorporated and stored forseveral years in hair proteins evaluated in our test.
Aluminum, Antimony, Arsenic, Beryllium, Bismuth, Cadmium, Lead, Mercury,Platinum, Thallium, Thorium, Uranium, Nickel, Silver, Tin, Titanium, Calcium,Magnesium, Sodium, Potassium, Copper, Zinc, Manganese, Chromium, Vanadium,Molybdenum, Boron, Iodine, Lithium, Phosphorus, Selenium, Strontium, Sulfur,Barium, Cobalt, Iron, Germanium, Rubidium, Zirconium
Ratio: Calcium/Magnesium,Sodium/Potasium, Zinc/Copper, Zinc/Cadium,Calcium/Phophorus
The hair test also provides exact ratios between nutrients and toxic metals. Theresults show levels of 39 toxic and essential elements, 5 ratios and come withan individual interpretation.
Bloodblood test is best for detecting recent heavy metals poisoning and for measuringlevels of minerals in the body.
Bismuth, Cadmium, Lead, Mercury, Nickel, Uranium, Calcium, Magnesium, Sodium,Potassium, Phosphorus, Copper, Zinc, Manganese, Lithium, Strontium, Sulfur,Molybdenum
Urine and fecalUrine and fecal tests are most adequate after taking a chelating agent.Chelating agents help extract heavy metals deposited in the tissues and bone.These tests are also important for evaluating the efficiency of chelatingtreatments since they measure levels of metals excreted from the tissues duringthe chelation. Urine and fecal elements tests are not recommended unless you areusing a chelating agent before sample collection.
FECAL:Antimony, Arsenic, Beryllium, Bismuth, Cadmium, Cooper, Lead, Mercury,Nickel, Platinum, Thallium, Tungsten, Uranium
URINE: Aluminum, Antimony, Arsenic, Beryllium, Bismuth, Cadmium, Lead, Mercury,Platinum, Thallium, Thorium, Uranium, Nickel, Tin, Essential and other elements:Calcium, Magnesium, Sodium, Potassium, Copper, Zinc, Manganese, Chromium,Vanadium, Molybdenum, Boron, Iodine, Lithium, Phosphorus, Selenium, Strontium,Sulfur, Barium, Cobalt, Iron, Tungsten, Zirconium
Food Allergy ComprehensiveHYPERLINK “foodallergy.html” (IgG-96 foods)
almond; amaranth flour; apple; apricot; asparagus; avocado; banana; barley;bean: string, kidney, lima, pinto, soy; beef; beet; blueberry; broccoli;buckwheat; cabbage; carrot; casein; cauliflower; celery; cheese: cheddar,cottage, mozzarella; chicken; clam; cocoa bean; coconut; cod; coffee bean; corn;crab; cranberry; cucumber; egg white; egg yoke; filbert; garlic; gliadin;gluten; grape: red; grapefruit; halibut; honey; lactalbumin; lamb; lemon;lentil; lettuce; lobster; milk: cow, goat; mushroom; oat; olive, black; onion;orange; oyster; papaya; pea; peach; peanut; pear; pecan; pepper: bell;pineapple; plum; pork; potato: sweet & white; pumpkin; radish; raspberry; redsnapper; rice: white; rye; salmon; sesame; shrimp; sole; spelt; spinach; squash:zucchini; strawberry; sugar cane; sunflower; tomato; tuna; turkey; walnut;wheat; yeast baker’s; yeast brewers; yogurt
Inhalant Allergy Comprehensive (IgE 22 tests)
Altenaria tenuis (mold), Aspergillus fumigatus (fungus), Bermuda grass, Candidaalbicans (yeast), Cat dander, Cladosporium herbarum, Cockroach, Dandelion,Dermatophogoides farinae (mites), Dermatophogoides pteronyssinus (mites), Dogdander, English Plantain, Fescue, Goldenrod, House Dust, Kentucky bluegrass,Maple, Oak, Penicillium notatum (mold), Ragweed, Rye grass, White pine
What else should I be asking for ???? Liver function? RBC????
Lillian
fjennings@…fldofdrms@…
Gfcf shampoo
I usually read the posts from the group, but don’t normally postmessages. However, I have a friend with a question I just couldn’tanswer. She’s looking for a shampoo with no Sodium Lauryl Sulfate orAmmonium Sulfate, also GFCF and no corn or coconut oils, preferablyorganic. Does anyone have suggestions? We haven’t found anything sofar that didn’t contain at least one of the items on the list.
Comprensive stool test
My son is stil in a diaper. The test says to not let the urine get intothe stool sample. How on earth is that possible if he has a diaper on?
Which cold remedy/remedies are gfcf?
These are what I have in my medicine cabinet right now. Are any ofthem GFCF? The only thing I know of that’s GFCF is Motrin Bananaflvour, but he’s got a real snuffly nose and coughing all throughoutthe night.If none of these are, could somebody please let me know which are.
~Dimetapp Oral Infant Cold Drops~Triaminic Cold & Night Time Cough~Equate Childrens Cough & Cold Syrup DM
Yeast free
I’m thinking of also taking yeast out of my son’s diet. Sincestarting the GFCFSF diet, his bowels have become solid and regular(thank God!), but that is all that has changed. What kinds of foodswill I be able to give him? Will items containing yeast specificallylist yeast as an ingredient? or as a leavening agent?
Sleeping problems
Sometimes there is a reation to outside irritations that are non foodrelated, esp. bug sprays, paint, solvents, swimming pool chemicals,molds, pollen, dust. Does this happen at certain times of the year? Mychildren and myself react very badly to most of these items in the air,water. Is there anything new in the room? Carpet, paneling, furniturecan be toxic while new. If you can’t pin it down and as a goodoccasional emergency solution try melatonin, a hormone sold at HFS forsleep problems. The trick is to spray it in the mouth, a tiny amountand then within twenty minutes put to bed in a dark room. It won’t workin a lit room because it functions by telling the brain it is time itsleep but only in the dark. Many adults use this product to reset theirsleep clocks after traveling or shift changes, I do. It does work butuse a tiny amount of the adult dose, some people report deep vividdreaming on large doses. Make sure that you aren’t stimulating the brain or body the lasthour before sleep, some food additives and artificial colors causehyperactivity and abnormal excititory states, and I would use a epsomsalt bath before bed to relax. If nothing else works, you might try Tenex, a small dose is widelyused to help sleep and anxiety. It is a blood pressure medicine but hasbeen used a lot in the autistic population, even on very young children.
Autism
I’m new to this site but not new to autism. Our son was diagnosed 3years ago but we have suspected long before that. We are trying thegfcf diet and are having some great success with it. I beleive indoing what we can for our children. But when does it get to a pointwhen we are trying to make our children into something that they justaren’t. Some of these children aren’t going to be “normal” no matterwhat food you take away from them. When you get into this completelyare you ever satisfied with the results you can get or does it justlead on to something else? Sooner or later you are going to have toaccept the child you were blessed with and be grateful everyday thatyou have been chosen to care for such incredible being. I don’t want tooffend anyone or cause a huge stink, but these are my thoughts.
Epsom salt baths
Is it ok to give epsom salt baths every day? They really halp my son sleepbut not sure if that is safe.