Ivig infusion
Has anyone heard of this IVIG Infusion, my son sees Dr.Levinson inMiami and he is my sons DAN doctor and he is suggesting we do this??
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Jared Credi said,
Wrote on March 7, 2007 @ 12:30 am
I remember Dr. Levinson from the DAN conference in Boston last year. Itcan be very confusing how the different Dr.s do different things atdifferent times….. We know that autism is a “finger print” disorder,another words, every child has to have his or hers own personalizedapproach to this disorder. With that in mind then, we have to do whatis best for our child, despite what others might say. It is up to us astheir loving parents to trust our instinct and then trust the Dr. Iencourage you to… read, research and listen, and go to conferences ifpossible. Then you make the decision for your child. Our son Jake has 2DAN docs. Dr. Seth Pearl {Whiteplains, NY} and Bradstreet {actuallyScott Smith PA}, who is in Melbourne Fl. They are both very repectfulof decisions we make together as a team for Jake. If all the pretestinghas been done on your child, and your comfortable w/ the therapy, thengive it a try. Personally, I feel there are other avenues, lessinvasive, to explore first. We are currently doing DMSA transdermal w/Jake and are having great results. Prior to this we tried DMPS, and itwas not a good match for Jake {and insurance doesn’t cover it}. Trialand error. A friend of ours is doing IVIG w/ her son, through Dr.Boch, she says it ’s very expensive, but seems pleased w/ the therapy.Make sure you are completely comfortable with it. Hope this helpedempowered you.
Edgardo Hemlepp said,
Wrote on March 8, 2007 @ 10:10 pm
We were due to start IVIG on Dec 28th but there is a shortage ofIVIG in Alabama. It was pushed to start in February. I am reallyexcited about it. We did have to show a constant “no change” in mysons immune system form labs over the past to years to get insuranceto pre-approve it. But the did so we’re starting soon.