Got the gluten /casein report back
I just recv’d the Urinary peptides report back from Great Plains. I’mconfuse as to what it means.My son’s ratio for Casomorphin(milk) is 0.33. The normal ratio is <.95His ratio for Gliadorphin(Wheat) is 0.72. The normal ratio is <.95
Does this mean that my son is really okay with Gluten and casein.?According to the test he is within th normal range. So does this meanthat I can take him off the GFCF. We have been GFCF for the past 5months.What is really confusing is the fact that when we did this urinalysiswe have been on the diet for 4 months. So if he was not getting caseinand gluten at that time, then ths test would show that his within thenormal range. Should we have done this test before we went GFCF? Anylight on this matter would be appreciated.
This post tagged as: wheat gluten is, gluten diet what to eat, gluten diet
Santina Winkelbauer said,
Wrote on March 9, 2007 @ 11:52 pm
Let me start off by saying that I am not an expert on this test, but amfamiliar with it as we have done it twice for our daughter, once when she wasgetting minimal milk and full wheat and another time when she had not had milkin several years (except occasional infractions) and still full wheat.Interestingly, the second time her milk score was even higher than the firsttime, but according to Great Plains the two proteins can cross-react, so we’refiguring it was the wheat, which we took her off soon thereafter (especially asshe also showed IgG sensitivity/intolerance to wheat, spelt, and the two mainproteins in wheat at the same time as the second organic acids test).
The first thing to look at, before you look at numbers from a test like this(especially as they are probably not an accurate reflection of your son’s scorespre-diet, see below) is whether or not you (and others around you) have seen achange in your child from the diet. This can be vocalization/verbalization,intestinal issues clearing up, better transitions, eczema clearing up, sleepissues clearing up, reduced or eliminated behavior issues (tantruming, stimming,etc.), or any of a number of other things that may be affected by wheat and/ormilk in a sensitive child. Think back or look back at records from 5+ months agoand see what was happening in your child’s life as far as these various issuesand what you noticed both immediately upon starting the diet, once anywithdrawal symptoms had cleared, and now regarding things that you have beenattributing to the diet (if any). Have you seen benefits and have you seen anyof these issues return if he’s had any infractions (times he’s eaten something that’s not gfcf once he started the diet)?
Being that your son has been on the diet for 5 months, these results are notaccurate for what they would be if he were eating things containing glutenand/or casein. A urine test, at least as I understand it, for the most partshows what is happening with the food that has been ingested in the past day orso. To have a wheat score so close to the cutoff when not ingesting wheat makesme wonder if he still has some gluten stored up in his system, which is highlylikely depending on his age (older kids can take 6-12 months to completely useup the gluten stores they have, whereas casein clears much faster, usually in amatter of days or weeks, from what I understand), in which case you haven’t evengotten the full benefit of the diet yet. Another possibilitiy is that he isgetting hidden gluten somewhere (a flavoring or something like that) but I’m notsure. With a score this high while on the diet, I don’t want to think what itwould have been if you’d done the test when he was on the “standard American diet” or whatever we want to call the non-GFCF diet mostkids eat. (I’ve often wondered what our daughter’s milk score would have been ifwe’d done the test when she was drinking milk, eating cheese, etc., instead ofjust getting the whey in McNuggets and occasional bread with milk in it.)
I don’t know if you started him on the diet “cold turkey” or used a graduatedapproach such as the one on the http://www.tacannow.com website that gets frequentmention on this board. In either case, if he showed withdrawal symptoms thatwould be another indication that he needs this diet, as it indicates he wasbreaking down wheat and/or milk products into morphine-like substances. That iswhat the urinary peptides are, is the end result of incomplete breakdown ofproteins. The process should go all the way to individual amino acids but forsome reason for some people it stops early at the level of chains of aminoacids, in these cases similar in structure and effect on the body to morphine orheroin. I guess the <.95 ratio indicates that we all have at least some in oursystems, but for most of us the majority of the milk- and gluten-containingfoods we eat break down properly (all the way), whereas for others, it doesn’tand they are essentially “drugged” or “high” as a result when eating these foods.
Keep at it. Rather than indicating that you can take him off the diet, itlooks to me like the results indicate that you are doing the right thing byhaving him on the diet.
Emanuel Sukup said,
Wrote on March 11, 2007 @ 9:21 am
Thank you. Maybe you’re right and that my son still has storedgluten in his body. We have been so careful with the diet that wedon’t get any infractions. But who knows, I can’t watch him 24/7especially in school. We have our ups and downs with the diet. Thefirst few weeks on the diet we saw great results especially with eyecontact. Now, 5 months into it we have not seen much except moresensory issues. Maybe this is withdrawal?
Santina Winkelbauer said,
Wrote on March 12, 2007 @ 8:49 pm
To my knowledge, increased sensory issues are not withdrawal. If anything,depending on if they are what appear to be “hyper” sensitivity to variousstimuli, it would indicate to me that the “fog” from the peptides is lifting andhe is having difficulty getting used to the new level of awareness he’s got nowthat the “drugs” are out of his system. If his system was programmed that”normal” was what he was perceiving when full of morphine-like compounds,imagine what it must be like for him to be experiencing the “real world” the waythe rest of us do, as far as overload. See if you can get him evaluated atschool or elsewhere for sensory-integration-based occupational therapy services.”The Out-of-Sync Child” is a good book to read about this, and I know othershave recommended other books.
Melisa Schumpert said,
Wrote on March 12, 2007 @ 11:50 pm
He might. My son improved when I added back wheat with HNI enzymesand removed rice and corn.
Or he might have a problem with one or the other or both, that is notshowing on the tests.