Parents worried about skinny kid

We have a four year old with autism, who is on the gfcf verystrictly for over two years. We saw major changes in the firstthree days and never looked back.

The problem at the moment is that he is getting skinnier and hedoesn’t want to eat his foods. He has had a cold lately and an earinfection which may be contributing to a poor appetite I guess.

My wife is wanting to experiment with normal foods to see how hewould do. He has been on AFP Peptizyde and Zyme Prime (enzymes) forabout a year as well. She went to a conference that convinced herthat could heal leaky gut in a few months. Doc said don’tcount on it, keep him on the gfcf til he’s older. I object togiving him normal foods because our doctor told us not take him offand I’m worried about negative effects, like our son taking a tripback to la-la land.

I would rather try to scientifically determine his ability to handleG and C before any experimentation with normal foods.

So, can someone tell me which tests determine g/c intolerance,conclusively?

Also, are there GFCF protein shakes or something that could put alittle weight on him? Hardly an ounce of fat on his little body.

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4 Comments so far »

  1. Mia Kinzig said,

    Wrote on March 15, 2007 @ 10:42 pm

    There are a great many people who have taken their kids off GFCFsuccessfully using Houston’s enzymes. Many of the reports I’ve readfrom people who have done this express that their children do muchbetter after leaving GFCF with the enzymes. The thing is, thosepeople would not be on this board. If your doctor is a DAN! doctor,DAN! is very much against Houstson’s enzymes and the idea that theycan help some kids get off the diet.

    As far as I can tell from everything I’ve read, this is much more ofa politically motivated stance than a medically motivated one.

    There are no conclusive tests to determine whether someone cantolerate gluten or casein. I am currently reintroducing casein tomy son. He has been GFCF for about 9 months. Initially we sawgreat progress too, but he needed much more than the diet. Becauseof other interventions we’ve used , I feel like his body is readyfor a diet that includes casein and gluten. I’m introducing thingsslowly and watching carefully. I think that is all anybody can do.You may want to join (if you’re not already there) the enzymes andautism board run by Karen deFelice. I believe there are a goodnumber of people who could advise you on reintroducing G and C ifyou do choose that route.

    It is very easy to make your own protein shakes with rice proteinpowder. I use the regular Nutribiotic with fruit to flavour it. Ibelieve it comes in chocolate and vanilla also.

  2. Ike Eytchison said,

    Wrote on March 16, 2007 @ 5:06 pm

    My son used to be chubby but grew skinnier as he approached 3 years old. We started him on gfcfsf when he’s about 4 years 2 weeks old & today at 5 years 7 months old, he’s rather skinny (20-21 kg). I would say he turned skinny before starting the diet though it’s likely the diet make him even skinnier as the major bulk of fat (from formula milk & his favorite ice-cream is taken away).

    Kirkman has a milk alternative (potato milk) but I doubt it’s high in fats that can help put on weight : http://www.kirkmanlabs.com/products/casein_free/vance/DariFree_21_S_Spec810.htmlKirkman also has pea powder.

    We make substitute ice-cream from coconut milk but I heard coconut milk is high in cholesterol but we give once in a while.

    Healthy fats can be obtained from fish, in particular cod fish but it’s a pity - my son rejects it due to its smell/texture - we have yet to find a way to cook it well

  3. Wesley Marske said,

    Wrote on March 18, 2007 @ 3:37 pm

    Hi, I am from the Maritime Provinces in Canada and one of the staple foodsaround here for oh a century or so! :) is fish cakes.

    2 lb pkg salt cod (boil, rinse, boil, rinse, boil, rinse) GET THE SALTOUT!!! med size pot of boiled potatoes - mashed well 2 med. onions chopped & buzz in food processor or blender handful of parsley

    1/2 c corn flour (or crushed gf/cf cornflakes) salt & pepper to taste

    Combine all of first ingredients, will be very sticky. Use a 1/4 measuringspoon?cup? to form your patty, drop onto corn flour, turn over until coated.

    fry in a sm amount of oil in a frypan. My kids love these, and you can sneakin all kinds of stuff when you are making them! :) Natalie

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  4. Cathern Tomaszycki said,

    Wrote on March 18, 2007 @ 10:42 pm

    Dairy fat for any one is no good! Give the kid fish oil supplementsand stop worrying. If he is eating a good diet, it is OK to beskinny.

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