Gluten free diet blog

i get the daily digest please bare with me i’m chopping it up today.I appologize. I also left an important part of my earlier post out.searching vaccine ingredients lists i found an autism website that linked toa new form of alzhiemmer’s that soon results in death. questioning bovineserum in vaccines & wether is new alzhimmer’s or mad cow disease. my newborn,Joseph passed away in june with viral meningoencephalitis– could there bea link with the vitamin K??

I’ve emailed one store (no response, yet) and I’ll check in person withthe produce managers of the other stores, I guess.I’m also still waiting on a response from DelMonte on the gfcf-status oftheir Chunky spaghetti sauce…Lori (Alex’s mom) ++ , Prego spaghetti sauce in the Traditional flavor ONLYis gfcf. it is the only one in that line.– so far using Soymage parmesianstyle cheese. only tastes good on pizza or spaghetti, my non-gfcf kids ate agfcf pizza and thought was chefboyardee kit.what to feed during beginning the diet?Sharon, John was only wanting to eat spaghetti, mac n cheese cookies andbiscuits and gravy.sometimes bacon and sausage.began the diet ,i removed casein first. he is still only completely caseinfree with reduced gluten.we use envirokids cereals and rice bars. I provide his snacks at school. irequested Kroger to order them and the glutino blueberry nutrigrain stylebreakfast bars are a favorite.I learned what was okay by going to www.missroben.com and searching glutenfree dairy free.My son who is five gets acne like bumps on his face when he eats things+++I thought skittles were made with citrus juices for flavor.correct me if i’m wrong. dye is a big issue with John.

At least once every 2-3 months, someone posts here or elsewhere abouta supplement recommended by a DAN doctor that contains casein. A DANrecommendation is not always trustworthy. I stopped doing the bath when the arsenic issues came about. I startedusing melatonin plus magnesium from Kirkmans. It works well.

On a daily basis, people post about negative effects in their childbrought about by supplements recommended by a DAN or other doctor.Doctors do not know with certainty how any child will react to anysupplement. Only you can know that, by observing your child andwatching for problems. +++If you allergic to herbs,plants,etc. like we are. You have to beespecially careful with supplements.

If the child is high sulfur, giving high sulfur foods will causeproblems: eggs, dairy products, bakery products containing whey,cabbage, bok choy, cauliflower, broccoli, broccoflower, brusselsprouts, kale, turnips, rutabagas, asparagus, onions, shallots, leeks,garlic, coffee.+++I give garlic for yeast — is there a difference in why it’s sulphur anda yeast killer.??can u explain.?

We let him eat gluten foods all day. No differences. No

Which of his antibodies to wheat were elevated? If I’m not mistaken, whenthey’re looking for celiac disease they do both IgA and IgG to wheat. If it isboth, I’m not sure if they can say for sure that he doesn’t have celiac, evenwith the other test being ok, but I’m not sure. If he has only elevated IgG,they will probably tell you it’s meaningless. As far as celiac disease, maybe itis, but not as far as other things. Our daughter had high IgG to wheat when theywere looking for celiac disease and they told us that was meaningless. Someoneelse said it could be one of 20 things. I wish now I’d said, “Ok, let’s startworking through the list. What’s #1?” When we did a full IgG panel a few yearslater, the only things she had even a moderate score on were wheat, spelt(ancient wheat), gliaden (another wheat protein) and gluten. Once we took heroff wheat and other gluten-containing foods, we were also able to take her offher prescription laxative that the same doctor who’d told us we absolutely shouldn’t take her off wheat (we’d already taken her off milkwith very good results) had put her on. Eating a lot of food and still losingweight and also being constipated sounds like the food isn’t beingmetabolized/digested properly, possibly due to enzyme deficiencies or otherintolerance issues. It sounds like, even if your son doesn’t have celiacdisease, either digestive enzymes aimed at wheat or a wheat-free diet areimportant to him.

I posted last week (Friday) about how panicked I was about beginningthis diet and how I couldn’t even imagine…I was drawn to finding outinformation about the diet after my son’s teacher told me that he hadhead banged on Friday…that had never happened before. We have seensome recent changes in him after a recent ear infection that requiredtwo antibiotics (Omnicef) and then Biaxin (to which we ended earlybecause of an apparent allergic reaction - hives).

I started by simply eliminating milk, cheese, yogurt etc. on Saturdaymorning - cold turkey. We have allowed soy milk (just to see) andtoday I saw it’s effects.

When greeted when I picked my soon to be 3 yr. old ASD son up at hisMothers Day Out Program I walked in the door and he excitedlysaid “Mommy!!” He went to the coat rack and grabbed his jacket andsaid “Bye” to his teachers as I helped him with his coat. Then hegrabbed my hand to show me the Felt Turkey’s they had played with - soI asked him what the Turkey says…usually I end up answering it forhim (as with all other animal sounds) and he said “GOBBLE GOBBLE!”

I left with his hand in mine crying…his teacher cried too…

I can’t believe it…

If you read the other message I just posted, you’ll know that myown son is doing pretty well, but I’m kind of ignorant about thechemistry/biology of what we do.

Anyway, this time I’m writing about my friend’s teenaged son with AS.They haven’t done the GFCF diet–well maybe they tried it for a shorttime, but they didn’t think benefits were worth the effort so theystopped. They haven’t been to a DAN dr either, just traditional MDs.

This kid is doing pretty well except for one thing. He thinks abouthis “special interest” 24/7 and it’s interfering with his life. Hecan talk about little else and has difficulty concentrating on schoolwork because of it. A neurologist or psychiatrist put him on sometype of med to help with this, but it gave him seisures.

Does anyone have some general suggestions that I can share with hismom? She is at her wit’s end. I think she’s willing to try somethingnew, but doesn’t have a lot of $$ to spend and is skeptical thateliminating foods will help HER son.

Does anyone have a good vanilla icecream recipe using rice milk but no eggs?

Its been almost a week on the diet and its been hard. I’ve pretty muchmade seperate meals for my son and I’d say he only touches about half.He will not touch the rice milk unless I put cocoa in it so I’m afraidhe is not getting enough to eat. (I nervious about giving him too muchsoy because he has had pretty bad reactions to beans) Today my husbandtook him to McD’s and gave him chic. nuggets not realizing they werenot on the diet and he ate several (usually he only eats one or two).H wouldn’t eat his breakfast som I’m sure he was hungry. Anyway,I’mwondering if we’re putting him through this for a good reason. I knowits early but maybe some of you can give me some feedback as to howlong it might be before I’ll see some results.

James drinks water excessively

IS THIS A SYMPTOM OF ANYTHING???

I drink about 80-100 oz. of water a day in sports water bottles. My teendaughter drinks lots of water, James drinks lots of water. I think I calculated160 oz. in one day and 16 trips to the bathroom.

The doctors were concerned…they did fasting urine tests, first thing in the morning urine test, bloodtests, sonogram of his liver and found nothing wrong with him.Finally decided it was a “learned behavior” that is “okay, as long as itdoesn’t affect his learning” (going to the bathroom during lessons and missingwhat is taught).

Since the symptoms of this “intolerance” and “allergies” are can be the “notobvious” things… I thought I would ask about this unusual thirst forwater. Is he craving something that is IN the water??? Is he craving somethingthat is BAD for him IN the water? Am I grabbing at straws here??

Thanks for any suggestions

I am shopping around for cookware for my son who is high functioningautistic, and I’ve read in earlier posts that stainless steel is ok.My question is… Is there such a thing as pure stainless steelcookware with no aluminum or copper cores? Even the really NICEstainless steel cookware has an aluminum core covered with stainlesssteel. The other choice is copper bottom. Are iron skilletsharmful to asd children? Suggestions of brand names and stores wouldbe appreciated. Thanks!

In my attempt to find out if Dora The Explorer Fruit snacks (byNabisco) are gfcf I found out that the Kellogg Disney Fruit Snacks arethe only ones “formulated to not contain gluten”

Does anyone out there let their kids have Disney Fruit Snacks? ShouldI trust the statement “formulated to not contain gluten”? I amdesperately trying to find something that my daughter will eat. (Iknow that there are food dyes in the fruit snacks, but for now I amjust trying to get her gfcf)!

We are chelating with TD-DMSA. My son was having some “behaviors” that leadus to believe he need more zinc. We doubled and then tripled his zinc doseand we’re seeing wonderful things - very calm, happy, spontaneous languageand the “behaviors” are gone.

Can you OD on zinc?

We will be doing a full round of testing next week, but I’m not sure if Ishould be concerned about this zinc dose or not.

Any thoughts are appreciated.