Matching of symptoms
I was just wondering if anybody has the same/very similar symptoms as my boy. Ifso, maybe we could compare notes. I just think there should be a softwareprogram where we could enter our childs symptoms and match with others.
My son just turned 5, was diagnosed with PDD and is very high functioning. Hehas had his vaccinations and showed symptoms around age 3. They were hard tonotice because he was so high functioning. He had antibiotics once when he was 3days old (a lab error in weight caused them to put hi in intensive care).
Some days I think he is so, so neurotypical but other days it is clear he isnot. His symptoms are:
CurrentlyNever gets sick ! (if he gets a cold it is over in 24 hours)Bad eye contactDoes not respond to name (need to repeat, repeat)Slow language processing (great vocabulary but is slow getting it out)Chews his blanket every night (until totally wet)Mouths objects a lotHand flaps a littleStool is looseVery passive and neutralLow energyDoes not know what to do socially with peers, acts like a clown as a fallbackOn his own agendaDistracted easilyNot very responsiveHe is constantly hungry (always a good eater but more so on the GF/CF diet)He is a solid guy - 42 lbsDoes not appear sick looking (circles under the eyes and pale but not sickly)Good sleeper
In the pastQuiet (never said much but had a good vocabulary), with the current interventionhe is becoming chattyDrooled excessivelyToe wallked a littleAlways had loose stoolOnly one ear infectionAlways withdraws from social interaction with peers
Hair AnalysisAluminium - 14 (high)Arsenic - 0.12 (high)Lead - 1.5 (high)Mercury - 0.66 (high)Silver - 0.42 (high)Tin - 0.34
Total Toxic Representation - 90 percentile
This post tagged as: ear infection, antibiotics, pdd nos
Kristle Ogburn said,
Wrote on April 4, 2007 @ 11:56 am
My son’s symptoms are very similar.functioning. He has had his vaccinations and showed symptoms aroundage 3. They were hard to notice because he was so high functioning.He had antibiotics once when he was 3 days old (a lab error in weightcaused them to put hi in intensive care).Dimitri was diagnosed with Sensory Integration Dysfunction at the ageof 5 (he is now
. I felt something was still not right so I keptgoing and at the age of 7 he was diagnosed with Aspergers. He is veryhigh functioning and did kindergarten, grade 1 and grade 2 in amainstream school with no aid. I set up an IEP for him beginning ofgrade 1 however, as his pace is slow and needs more time to ie..getdressed, undressed, complete a task etc. Up to now he would getdistracted but not to the point where he couldn’t be prompted to getback on task. This year however, he seems to be at his worst. He hasbeen assigned an aid for 1/2 the day and with difficulty staysfocused even when prompted. Can hardly remember what he has to donext in anything other than what he loves palying with.
clear he is not. His symptoms are:Dimitri seldom gets sick but when he does it takes very long to getover a lingering cough which provokes vomiting frequently.His eye contact is not good but better than what it wasResponds after repeat calling except on rare occassions
out)His input of processing is quick but very slow on the output.Excellent vocabulary as well and very knowledgeable on many thingsbut can not articulate well and needs lots of time getting it out
Wipes his lips a lot with his sleeve…says he feels they are too wet( but they are actually not…seems the average moisture bothers him)
Does not mouth but always smells his fingers/hands after touchingsomething especially something new or what he feels may smell nice.Used to on occassion hand flap at the age of 5
Stool is neither loose nor hard
My son is also very passive and neutral .Does not initiate howeverwill follow lead
Very low energy and hardly any stamina.He is super low tonedphysically which carries itself to his voice as well. Speaks so lowhe can hardly be heard. His speech is not clear as the fine motor ofthe mouth is affected. His central nervous system is low toned thisaffecting every single part of his body.His has done pyhsio therapy with no great changes.
a fallbackDimitri does not know what to do with peers. Will sometimes seek outto play but within a few minutes goes off by himself. If taken tojoin a group will play for 2-3 minutes then off he goes to do his ownthing.
Currently he is worse than ever on this issue. Totally out of synchand on his agenda ALL the time even when being reminded and prompted.
Very easily distracted and forgets what he was doing previously.
His non responsiveness is accentuated . Again he is at his worse lastfew months.GF/CF diet)
Not a great eater. Does not eat good quantities .His apetite hasnever been big but again lately unless he has gone for hours andhours he won’t eat much. ( CF last month)
Not a solid boy. Has built literally no muscle. His body islike ‘raggedy ann’. If someone so much as accidentally nudges him heloses his balance and falls. He is 8 and weighs 55 lbs .
not sickly)
Same pale and this skin under the eyes.
Generally a good sleeper bu for the last 6 months it takes him along time to fall asleep.intervention he is becoming chatty
touching the ground 1st.
time. Not comfortable reciprocating if not prompted as to what to do.
Worth mentioning is the fact that his legs tire easily. To ie lifthtem higher than necessary going up the stairs requires extra effortwhich tires him so he does not do it. Getting out of a car is atremendous task as he has to work extra hard at it.He has also been given a diagnosis of a mild form of musculardystrophy in the Lower Pelvic Girdle ( which are the hips down)
Dimitri’s executive skills : planning, organizing, sequencing are notgood. If given multi stepped instructions by the time he hascompleted step 1 he forgets step 2!!
I am waiting for the results of the 1st round of blood tests from ourDAN so I have no clue at the moment what the toxicity levels in himare.
Don’t know if this comparison helps you …we would need to followthe changes on each same issue they have and evaluate the results inorder to know what is working and how.
Have you seen changes with the cfgf diet? What other supplements haveyou started him on and has he reacted well to them ? I am new to theDAN protocol myself and CF for the last month has no visible changesso far. Preparing to eliminate to gluten now.
Best wishes
Mckinley Mcelhone said,
Wrote on April 6, 2007 @ 3:25 am
Your son sounds exactly like my son before going gf/cf. Many peoplebelieve that soy can also cause the same reactions as casein. Many of thesymptoms you noted re-emerge in my son if he has a casein infraction. You saythat he is always eating, is it usually soy products?