Gluten free diet blog

Hi everyone moved my son up to one full enzyme with each meal and he isexpelling an awful lot of stool and saying he has a stomach ache. Is he nottolerating the enzyme, or is this some kind of die off, should i go back to1/2??

My daughter started receiving her MB12 injections since Dec 9.

Her tantrum is very high and recent few days, she scream/shout in thenight, but will usually continue to sleep though.

Has anyone experience this increase in tantrum with MB12 injections? Iam wondering if her tantrum and bad sleep is due to diet (she has beenon GFCF since Sep and scd since Nov 26) or her MB12 injections. Anythought or suggestion will be much appreciated.

For the past couple of weeks DD (age 2 years, 11 months) has been waking upin the middle of the night. She’s not particularly active when she does it,but she loudly babbles to herself, thrashes around in the bed, and laughsfor no apparent reason. This goes on for an hour or two. Then she is verygrumpy and tired when it’s time to get up in the morning. I’m trying tofigure out what the problem might be since she used to be a pretty goodsleeper. I have been tinkering with her supplements a bit lately. She is onthe Freeda B-12 lozenges (100mcg/each) and I raised her dosage in the middleof last week from 100 to 200mcg. Also three weeks ago I started giving herGSE because of suspected mild yeast issues. I’m reluctant to discontinueeither because we have seen significant daytime improvement in hersociability and learning (I want to get her B-12 even higher). Does thissound like maybe a phenol issue? Or something else I’m not thinking of?

My son has been putting his hands in his mouth the last couplemonths. We thought it was due to molars, but now he mouths his long-sleeved shirts. He isn’t exactly biting, but it looks like it’sheading that way. He seems to do it most when tired and also whennervous such as around someone he isn’t comfortable with. So it seemsto be soothing. (I noticed that a friend of his literally chews hissleeve when overstimulated). Right now, I gently pull his sleeve outof his mouth & keep him otherwise occupied hoping to prevent the habitfrom taking root. He also puts his hands in his pants a lot again whenhe is tired or when he is watching tv or if I am not playing with himand destracting him from it.

He is on a probiotic, and I cannot see any new foods that would add tothe yeast, but I realize this sounds like it might be yeast.

Any suggestions?

We get together with various relatives the weekend before Christmas every yearfor a gift exchange etc. Up to last year, things had gone relatively well as faras the food.

Last year there were two problems. #1: While in the past there has been both turkey and ham, there was only ham.I (and 2 of my siblings) am allergic to pork and our daughter has never had it,so we had to bring our own meat. The bigger issue about this wasn’t that theturkey was dropped from the menu, but that the hostess had another relativeinform me of this, rather than telling me herself. (At previous gatherings whenboth meats were present, I had often gotten kidded [to put it kindly] about myconcern that separate serving implements continue to be used as people got theirfood, buffet-style, from the counter. As I am sensitive to pork at across-contamination level, this was a necessary precaution. The main perpetratorof the “kidding” has since gone out of their way to make a very safe meal forour daughter, so I think they’re getting the hang of this allergy stuff. unlikeothers in this group of relatives.) #2: Everything on the menu (with the exception of the ham) had milk in it. Ourdaughter has been off milk for several years and everyone at this gathering knewit. We had just taken gluten out of her diet about 2 months before that and Icommented after dinner about how other relatives we had spent Thanksgiving withhad worked hard to make sure there was a good variety of foods she could eat.One or more of the relatives at Christmas said “but they knew about her (new)restrictions,” which I hadn’t mentioned to this group until we were with them.Considering how they handled her restrictions that they did know about, Idon’t think it would have done much good to tell them about the new ones.

Fast forward to this year. Again, the turkey won’t be there, supposedly forfinancial reasons (”we can’t afford to do both” was what the hostess told mewhen I called to discuss the menu). Funny, when I checked the relative price perpound/serving of the two meats, I found out ham is about twice what turkey is.Then again, being she uses cooking bags (flour) and would probably stuff thebird, my daughter probably couldn’t eat it if she fixed it, anyhow.Incidentally, she had planned, until I called her about the menu in general, tohave a different other relative inform me of the missing poultry. I was able toask her to use safe margarine for the sweet potatoes, but that will be the onlything our daughter will be able to eat, if she does indeed do that (and I’m notholding my breath). There will be several other dishes, all of which, if lastyear is any indication, will contain unsafe ingredients, usually milk. I don’texpect every dish there to be safe for her, but only one out of however many and that only because I specifically asked how she was going toprepare it and told her a simple adaptation to make it safe isn’t a very goodratio (and also makes me all the more sure that the comments last year about”but they knew” about her more recent restrictions were as empty as I’d thoughtthey were then).

The crowning glory this year, besides the fact the hostess again hadn’tplanned to tell me herself about the menu, is that when another relative calledto tell us the gathering had been rescheduled, she commented that I would needto bring things for our daughter (and, in the case of the main dish, myself) toeat, and then added that I should also bring them “to pass” or words to thateffect, since food is so expensive (I don’t think she knows that was therationale the hostess used for not including the turkey). Not that any of therelatives are exactly on “Easy Street” nor are we, but at the same time, I had ahard time not responding (reacting?) to her suggestion that I bring enough ofwhatever I bring for our daughter and/or myself to eat since we can’t eat what’sbeing provided by others to share with them. Especially as our daughter tends toget “full” and then want more to eat 20-30 minutes later and we may well eatboth dinner and supper-type meals there that day, I am very hesitant even if we were not being excluded in the other foods to share what Ibring that she can eat, lest right after someone who could eat something elsefinishes what I brought for her, she wants more to eat. As many of us who arefollowing or have family members following various special diets know, peoplewho think “regular” food is expensive often have no idea how “cheap” it reallyis relative to specialty foods. There is also the time issue, in that we will becoming straight from church (the gathering was moved from Saturday to Sundaysince another family couldn’t come Saturday due to work commitments), whichmeans whatever we’re bringing we’ll need to pack when we leave for church thatmorning and bring with us (a 1 1/2 to 2-hour drive from church to thegathering). Therefore, I am not sure what meats would be safe to bring along andin what form, considering the distance/time involved in travel. I canrefrigerate or freeze stuff during the service if necessary, but as things are scheduled now, the group will be eating about the time we get there,so I will have to have it in ready-to-eat form or pretty close to it. I knowfrom an intervening incident when there were several birthdays and similarevents being celebrated at once at this same relative’s house that she wouldn’twait for me to get the cake for our daughter frosted before having people sing”Happy Birthday” to the various celebrants, including our daughter, so don’texpect she’ll give me time to do much food preparation before saying “Let’seat!” if everything that’s already there is ready when we arrive.

I am not sure how to proceed as far as whether to bring “extra” food besideswhat I can reasonably expect our daughter to eat (as well as meat for me). If Ido, I will have less of a problem sharing it with the other children and youngadults present than I will the not-so-young adults, as the former are notinvolved in the meny planning and purchasing of the food and therefore notresponsible for the issues that have occurred. In fact, one of the young adultsat that intervening birthday etc. party did her best to delay her motherstarting the song, realizing that I was scrambling to get the cake frosted, buther mother overruled her, so if she (the daughter) wants some of whatever, I’dgladly share with her. Not suggesting certain others have another slice of hamif they want some of what we bring might take more restraint, however.

What ideas can anyone share, either practical (such as to bring extra or notto bring extra) or dealing with the feelings of being excluded when the menu wasput together and people not making much if any effort to accommodate ourdaughter’s (or my) dietary needs, as well as the round-about way we wereinformed about the changes? So far, I don’t think our daughter is aware of thetension I am feeling from this, and I would like to keep it that way, as shelooks forward to these gatherings. She is used to me bringing stuff she can eatand not being able to eat many things at others’ houses, so probably won’trealize it could have been different with a little more effort on the part ofthose providing the food at this gathering.

Thanks for your help.

If anyone knows what grinding teeth can mean please let me know.My son is 2 and his current treatments areNizeal (sp?) for yeastgfcf multi vitaminprobotic 1x a day by klaire labsAlkaseltzer gold 2x a dayactive charcoal 2 hours before yeast med and two hours afterZinc at night away from foodb12 shot 1x a weekcalcium with vitamin c and magnesium powder that i cook in pancakes

Also if there any things you think i might try or add please feel freeto advise me.Thank you everyone! You all are a great help and appreciated greatly

My son is constantly stimming - an object in each hand up close to hiseyes. It is really getting out of control. Could this be caused bysome type of deficiency? Any suggestions for how I can treat this?

I am very new to this and have purchased some products that say “wheatfree”, I have looked through the ingredients and there was no wheat.Are these safe for GFCF diets? Does wheat free mean Gluten free? Howcan one be absolutely sure the product doesn’t have gluten?

We’ve been CF for several months and GF for about 3 weeks.We startedmy son on a multivitamin (Freeda Vitalets) and calcuimsupplement (Kirkman’s Liquid) about a week ago. His behavior hastaken a sharp turn for the worse in the past week. Spinning, hyper,tantrums, obsessive behaviors, seems “drunk” at times. I am re-examining everything I’m feeding him and I realize it might be a lotof things - we have not totally removed soy, so that’s a possibleculprit..I bought several bottles of pear juice and we are takingaway all other juices for now in case that’s the problem…but thefact that this behavior change took place when I started themultivitamins makes me wonder…could those be the problem? (Ithought Freeda/Kirkman’s were the “cleanest” choices available.) OurDAN appointment is not for another 3 weeks, and I am nervous abouttrying anything more than a multivitamin until then. Perhaps Ishould just stop the vitamins for now? Other suggestions?

I haven’t read Mothering magazine in years, since my youngest child is six,and I am no longer quite the “crunchy” mama I once was! But I was in WholeFoods today, and I saw that Mothering magazine had a bunch of articles onautism this issue. I bought the magazine, and it does look very good–lots ofarticles on chelation, therapies, alternative treatments, nutritionalapproaches,etc., with some very positive articles on kids who have either improved greatlyor recovered totally on some of these therapies. Just thought you guys wouldlike to know.